Publisher's Synopsis
Involving avid travelers father jaguar and the cub, and a supersmart kid Evan Messenger, this book is packed with descriptions of the rare pediatric diseases that are poorly attended due to the health insurance constraints: Batten disease, Carpenter syndrome, Ellis van Creveld syndrome, Fucosidosis, Gaucher disease, Krabbe disease, Legg-Calvé-Perthes disease, Niemann-Pick disease, and Prune Belly syndrome. An awareness raising brochure, it is dedicated to the Global Health Humanitarian Summit that takes place each year at Emory University, Atlanta, GA.
