Publisher's Synopsis
In this book, I will recount my experiences as a hemophiliac, from childhood to adulthood. I will try to faithfully describe everything I saw and lived through as a hemophiliac and, above all, as a human being on this long journey of life. In the second part, I will talk about my beloved son Jackson, who passed away before I could finish the book. My wish is that this work conveys to each reader the importance of family, human warmth, and companionship in facing the difficulties of everyday life. A hug to all and much peace.
NOTE: Hemophilia is a hereditary blood clotting disorder that causes bleeding. It is caused by a deficiency in the quantity or quality of clotting factors VIII or IX. There is hemophilia A, with factor VIII deficiency, and hemophilia B, with factor IX deficiency. My family carries the gene for hemophilia A.INFORMATION: It is estimated that there are about 1,000 hemophiliacs in the state of Santa Catarina, 13,000 in Brazil, and 350,000 in the world. Note: Data researched on Google.
