Publisher's Synopsis
In late 2004, the Tucker family found out they were going to have a baby girl. They were ecstatic, and when the day finally came all seemed well. But a few months after Jessica's birth, they discovered that she had an exceedingly rare disease called Niemann-Pick Type A. It was so rare that even the doctors had to search for it on the internet. This is their journey. Raw, unedited, and powerful, it will help you be thankful every day for those you love.
