Publisher's Synopsis
"Lupus and scleroderma are our shadows but they do not define us. We may have to wear the ugly dresses of chronic illness but we don't have to be the ugly dresses." -- Linda and Karen
If you are experiencing a long-term illness or disability, this book is for you -- as well as your family and friends. The authors share a collection of deeply personal stories and poetry to describe their journey from illness to health, well-being, and fruitful living. Their creative life management strategies provide a road map to help you:
- overcome overwhelming feelings of loss, grief, anger, fear, and powerlessness;
- navigate a healthcare system filled with individuals who can be patronizing or dismissive;
- field well-intentioned but hurtful remarks such as, "But you look so good!"
- walk the tightrope between seeking and accepting help and fiercely guarding your independence.
Chronic illness forces you to slow down and reexamine your values, your choices, and the way you define yourself. In If You Have to Wear an Ugly Dress, Learn to Accessorize, Linda McNamara and Karen Kemper offer companionship throughout the process, helping you face your challenges with dignity and grace.
About the Authors
Linda McNamara, RN, MBA: Linda is a registered nurse, healthcare consultant, and certified health coach with over forty years experience in health and wellness. She has been living with systemic lupus since 1996.
Karen A. Kemper, PhD, MSPH: Karen is a health educator and university professor in health promotion and public health. She has certifications in health fitness and life coaching and has worked in health and wellness for twenty-five years. She has been living with scleroderma since 1992.
